Three years ago, I headed towards Heron Lake for Access Adventure’s water-ski camp. I had such an amazing weekend, and I left wearing the biggest smile. But Ataxia has a way of reminding me that it’s still here, and i was wiped out with exhaustion and a cold for the following few days.
Naturopathy came into my life, and my healing journey began. As I’ve cleaned up my diet, to mainly plant based vegan, other things in my life have cleaned up. It is true that when you work on your body, it bring clarity to work on mind and then spirit. Continue reading “Bird shit”
Human on wheels goes coasteering with Celtic quest
I gave a shout out for outdoor adventure companies in Pembrokeshire to invite me along to blog about their accessibility.
Within seconds of circulating the email I received an enthusiastic reply from Cleopatra Browne at Celtic quest. Cleo said. That their accessibility wasn’t all bells and whistles but they will make it the best experience possible, her words were:
‘Open mind, sense of adventure and some warm clothes for afterwards!!’ Continue reading “Human On Wheels goes Coasteering”
Telling me that I can’t, motivates me to prove that I can!
‘Your test results show that you have Friedreich’s Ataxia..
…down the line patients can’t work…..can’t drive…..can’t live independently….’
Much of my diagnosis was a blur, but the repeated word that resounded in my head was CAN’T.
At a time when I needed some kind of hope, my head was just being filled by a negative word.
In that split second, after the annoying alarm jingle goes off , when my brain wakes up and tries to figure out – where am I? What day is it? What am I doing? My eyes ping open, it’s Ski Wednesday! ?
I want to run the half marathon. But I can’t run. I’m disabled.
The next option is to wheel it, in my wheelchair. But wait, that’s not an option, I struggle to wheel down the corridor.