Bird shit

Three years ago, I headed towards Heron Lake for Access Adventure’s water-ski camp.  I had such an amazing weekend, and I left wearing the biggest smile.  But Ataxia has a way of reminding me that it’s still here, and i was wiped out with exhaustion and a cold for the following few days.

Naturopathy came into my  life, and my healing journey began.  As I’ve cleaned up my diet, to mainly plant based vegan, other things in my life have cleaned up. It is true that when you work on your body, it bring clarity to work on mind and then spirit. Continue reading “Bird shit”

Get thinking

Tina in front of Brandenburg Gate in Berlin, with a lit christmas tree in the background

I’m not here to teach you anything, I want to make you think…

Hi, my name’s Tina Marie Evans, I’m 32 years old and born and bred in the Gwendraeth Valley, West Wales.  At the age of 16 I noticed something was up with my balance, I’d walk into friends and I found it hard to keep my balance whilst closing my eyes to pray in assembly.  After some doctor appointments and a few tests I was given the diagnosis, Friedreich’s Ataxia.  We had never heard of this rare condition, and being the typical Tina, at the time, I told my parents to do what they had to, I didn’t want to know, and just carried on with life.

 

I finished high school with three A-levels and went onto Aberystwyth University where I studied Theatre, Film and TV, made some amazing friends and had the best three years.  I would consider myself to be more practical than academic, but due to increasingly losing my balance I was forced to stop acting and take on the behind the scenes role.  I’m a positive person, and one of my key abilities is to see the positive in every situation.  Having some experience in researching landed me my first job with BBC Wales as a researcher for the Education department then with Radio Cymru.

Working in Cardiff prompted my move to Cardiff, I lived here for 7 years and grew as a person. Before moving to Cardiff I had to battle with my pride on whether to give in to the wheelchair,, at the time ‘giving in’ is what it felt like.  But I quickly became to realise that it was the best decision I could’ve made.  Doing the small things like going to town or walk with friends became hard work due to tiredness and slowly my confidence dropped, but the wheelchair gave me back the freedom to get around and slowly brought back my confidence, it actually made me feel more able.

Continue reading “Get thinking”